About Us

How was TARFfa formed?

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The Tristan Allamby Research Fund for Friedreich Ataxia (TARFfa) has been over 5 years in the making. The concept began the day that Tristan Allamby, then 4 years old, was diagnosed with Friedreich Ataxia in 2014. Through in-depth discussions and partnerships with neurologists, geneticists, scientists, researchers and charities, TARFfa is now a robust reality, with significant funding capacity.

 

One of the Co-founders, Natalie Allamby, has attended every International Ataxia Research Conference since 2015 and worked nearly 4 years on the FARA (Australia) Board as a Director. 

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Teamwork

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Teamwork is fundamental to the pursuit of our goal: find a treatment and ultimately a cure for Friedreich Ataxia. We work with researchers, scientists, neurologists and pharmaceutical companies to support research. We also work with charities where TARFfa provide funding for grants.

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TARFfa is run by a dedicated team of professionals who work on a pro-bono basis.

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Funding

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We are always reviewing new and exciting treatments and trials. TARFfa has currently over $500,000 for research grants. 

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We receive no government funding. Our funding is from Co-founders and from high net worth individuals.

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Funding is granted when recipients have passed a rigorous application stage, including ongoing review by our International Scientific and Research Advisor and the TARFfa team. Researchers who receive funding are accountable to TARFfa.